Money and Finance
This past week was rough for my wife and I. Last Saturday was our son's 1st birthday and then Monday we had a meeting with the doctors to discuss the autopsy report and Luke's case. Strangely enough it wasn't weird to be back at the hospital and was honestly kind of comforting for my wife and I because we both feel that many of the staff are now family members so it was great to see some of them while we were there.
My wife and I happen to be a bit different from most of the families with children in the NICU. It was always so sad to see how many babies that were there that rarely or never had their parents with them. My wife and I always planned to be there every step of the way for Luke and many of the nurses and doctors noticed. I also have to say that we paid very close attention to rounds and got a crash course in medicine in the 8.5 months we were at the hospital. Sadly we both know way too much about CDH, nursing, diagnosing...
Since we left the hospital in August there's been changes, primarily because of us and how difficult Luke's case was. They've since started daily multi-disciplinary rounds to discuss all of the CDH cases. We've also been asked to be a part of a group with doctors, nurses, management staff, and another family to help brainstorm ideas for ways to improve the care for some of the sickest babies in the NICU which should hopefully start up soon, my guess would be the first of the year. We've also both been asked to possibly do something with family advocacy and the Chief of Neonatology told us we're definitely a resource they're going to use. It doesn't take the pain away from losing Luke but knowing that there's changes because of him helps to ease the pain slightly. We've had countless doctors and nurses that have told us how much the three of us have taught them and how much they learned from us.
Other than that it was steady as she goes and time to head back to work. I was originally scheduled to go to work near College Station, about 1.5 hours from our house, but an emergency job came up and I drew the short straw and had to head to West Texas on Tuesday. Needless to say I wasn't very happy about that. Much further from the house and leaving a day earlier was not fun.
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- Weekly Roundup - June 27, 2015
As per usual this week was very up and down. Luke continues to befuddle the doctors since he rarely does anything that follows any text book. For starters, in normal babies if you increase the amount of oxygen they are receiving the oxygen their...
- Weekly Roundup - May 31, 2015
My weekly roundup is coming a bit later in the weekend than normal but I'm taking advantage of the time I get with Luke while I can. He's been doing well the last week and it's been so great having him be relatively stable. Especially...
- Weekly Roundup - May 9, 2015
This past week has been pretty crazy and I'm glad I haven't gone back to work yet. Each month we get a new doctor to be the attending, doctor in charge of Luke, and this past Monday they swapped again. Since we had a new doctor coming on we...
- Weekly Roundup - April 4, 2015
Well I'm sure you noticed that I didn't get a lot of writing done this week. That wasn't for a lack of "want to" but just a matter of lack of time. Monday at the hospital with Luke, Tuesday I headed back to work, Wednesday and...
- Weekly Roundup - November 15, 2014
Another week down! Although this one was rather boring, but right now boring is good. We finished up the last job early Monday morning so I started heading back towards Houston to meet up with my wife at the hospital. Well, go visit her at the hospital....
Money and Finance
Weekly Roundup - November 28, 2015
My wife and I happen to be a bit different from most of the families with children in the NICU. It was always so sad to see how many babies that were there that rarely or never had their parents with them. My wife and I always planned to be there every step of the way for Luke and many of the nurses and doctors noticed. I also have to say that we paid very close attention to rounds and got a crash course in medicine in the 8.5 months we were at the hospital. Sadly we both know way too much about CDH, nursing, diagnosing...
Since we left the hospital in August there's been changes, primarily because of us and how difficult Luke's case was. They've since started daily multi-disciplinary rounds to discuss all of the CDH cases. We've also been asked to be a part of a group with doctors, nurses, management staff, and another family to help brainstorm ideas for ways to improve the care for some of the sickest babies in the NICU which should hopefully start up soon, my guess would be the first of the year. We've also both been asked to possibly do something with family advocacy and the Chief of Neonatology told us we're definitely a resource they're going to use. It doesn't take the pain away from losing Luke but knowing that there's changes because of him helps to ease the pain slightly. We've had countless doctors and nurses that have told us how much the three of us have taught them and how much they learned from us.
Other than that it was steady as she goes and time to head back to work. I was originally scheduled to go to work near College Station, about 1.5 hours from our house, but an emergency job came up and I drew the short straw and had to head to West Texas on Tuesday. Needless to say I wasn't very happy about that. Much further from the house and leaving a day earlier was not fun.
Read more »
- Weekly Roundup - June 27, 2015
As per usual this week was very up and down. Luke continues to befuddle the doctors since he rarely does anything that follows any text book. For starters, in normal babies if you increase the amount of oxygen they are receiving the oxygen their...
- Weekly Roundup - May 31, 2015
My weekly roundup is coming a bit later in the weekend than normal but I'm taking advantage of the time I get with Luke while I can. He's been doing well the last week and it's been so great having him be relatively stable. Especially...
- Weekly Roundup - May 9, 2015
This past week has been pretty crazy and I'm glad I haven't gone back to work yet. Each month we get a new doctor to be the attending, doctor in charge of Luke, and this past Monday they swapped again. Since we had a new doctor coming on we...
- Weekly Roundup - April 4, 2015
Well I'm sure you noticed that I didn't get a lot of writing done this week. That wasn't for a lack of "want to" but just a matter of lack of time. Monday at the hospital with Luke, Tuesday I headed back to work, Wednesday and...
- Weekly Roundup - November 15, 2014
Another week down! Although this one was rather boring, but right now boring is good. We finished up the last job early Monday morning so I started heading back towards Houston to meet up with my wife at the hospital. Well, go visit her at the hospital....