Money and Finance
As per usual this week was very up and down. Luke continues to befuddle the doctors since he rarely does anything that follows any text book. For starters, in normal babies if you increase the amount of oxygen they are receiving the oxygen their bloodstream will then increase. Well, not if you're Luke because his body decided a few months back that no longer works for him. That's just one of the many things that Luke is writing in his own book on patient care. If you've been following Luke's story he's back to having his full on clamp down episodes where he sometimes has to pass out before his body will relax and he can recover. The weirdest thing about it all is that some are unprovoked as far as looking at him but you can tell from the monitors that are hooked up to him that there's a chance it's going to be that bad. But sometimes they aren't. And the weirdest thing is that this was happening last Thursday and Friday but then stopped until Thursday of this week despite no changes being made to any of his medications, ventilator support or anything really other than increasing the amount of milk/formula that he gets. He's a very confusing child to my wife and I, let alone the group of doctors that follow him.
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- Weekly Roundup - November 28, 2015
This past week was rough for my wife and I. Last Saturday was our son's 1st birthday and then Monday we had a meeting with the doctors to discuss the autopsy report and Luke's case. Strangely enough it wasn't weird to be back at the hospital...
- Weekly Roundup - June 14, 2015
As per usual we've had a few steady days with Luke and then a few rocky days. Hopefully the down days will start to be less frequent as we give him better nutrition but his body is so sensitive to fluid balance that small changes for most babies...
- Weekly Roundup - June 7, 2015
Quick update this week since Luke is giving me a chance to write a little bit. He hasn't strung together two consecutive good days in the last week but yesterday was good and today has been good so far. We're working on another update on...
- Weekly Roundup - May 23, 2015
Quick update this weekend since this past 1-1.5 weeks has been absolutely crazy with Luke. I don't want to go into too much detail here, but he ended up having both the best and worst day of his life so far but luckily he's still here and still...
- Weekly Roundup - April 4, 2015
Well I'm sure you noticed that I didn't get a lot of writing done this week. That wasn't for a lack of "want to" but just a matter of lack of time. Monday at the hospital with Luke, Tuesday I headed back to work, Wednesday and...
Money and Finance
Weekly Roundup - June 27, 2015
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- Weekly Roundup - November 28, 2015
This past week was rough for my wife and I. Last Saturday was our son's 1st birthday and then Monday we had a meeting with the doctors to discuss the autopsy report and Luke's case. Strangely enough it wasn't weird to be back at the hospital...
- Weekly Roundup - June 14, 2015
As per usual we've had a few steady days with Luke and then a few rocky days. Hopefully the down days will start to be less frequent as we give him better nutrition but his body is so sensitive to fluid balance that small changes for most babies...
- Weekly Roundup - June 7, 2015
Quick update this week since Luke is giving me a chance to write a little bit. He hasn't strung together two consecutive good days in the last week but yesterday was good and today has been good so far. We're working on another update on...
- Weekly Roundup - May 23, 2015
Quick update this weekend since this past 1-1.5 weeks has been absolutely crazy with Luke. I don't want to go into too much detail here, but he ended up having both the best and worst day of his life so far but luckily he's still here and still...
- Weekly Roundup - April 4, 2015
Well I'm sure you noticed that I didn't get a lot of writing done this week. That wasn't for a lack of "want to" but just a matter of lack of time. Monday at the hospital with Luke, Tuesday I headed back to work, Wednesday and...